Anybody Got an Aspirin?

*I started writing this post on Saturday, Aug 11th

 At first, I wasn't really sure whether or not I wanted to post about this on my blog, but the idea of putting my thoughts about all of this somewhere felt comforting, and so I changed my mind. Not to mention the plus side of trying to record the overload of information I received yesterday as well as the possibility of relating to anyone else with a similar situation/history.

I just realized as I was filling you in on the background, it seemed as though I was building it up to tell you I was dying or something. So I've decided to forego the suspense and start out with the punch line:

Yesterday, my neurologist told me I shouldn't have any more children.

Now, allow me to back track a bit.

In 2007, I found myself pregnant with my beautiful baby boy, Ryder. I dare say it was my smoothest and most uneventful of the three of my pregnancies. Ten days past his due date we arrived at the hospital to start an induction. Somwhere between hooking up my IV and administering the epidural, I experienced  a little aphasia episode (even though I'm not sure if that's the correct term for it). As the nurse was asking me a bunch of questions, my answers began to come out all jumbled.  Essentially, there was a disconnect between my thoughts and processing them into words. Kinda like the light is on and someone is home, they just can't come answer the door. Unfortunately (or perhaps fortunately), the nurse didn't even go get a doctor. She attributed it to anxiety and moved on. That did always bother me a little bit.

Ryder

At the end of 2009 we were blessed with baby #2! This pregnancy was also pretty smooth. I did notice an increase of headaches that usually came with blurry circles and blind spots. Luckily, they started getting farther and fewer between as I approached my third trimester. Penelope Rae joined our little family safe and sound.

Penelope

And here we are in 2012 with our sweet Hazel Ane. This pregancy was different. And by different it was a lot harder than my previous two. I finally got to see what morning sickness was and those wonderful migraines came back. Again, however they started fading around the middle of my second trimester. Phew! Around week 35/36 I was disappointed to feel a migraine coming on. However, this one brought along another aphasia episode. This one wasn't nearly as dramatic since I was at home and no one was forcing me to speak. I just felt that confused feeling and felt like I should go sit down. I was helping the kids clean there room and so after I sat on their bed and rested for a minute I asked Ryder to get me something, I looked at him smiling at me like he was about to laugh because I think I had asked him to get me something pretty random. It would be like I didn't realize what I was saying was mixed up until after it came out of my mouth...or I had my son looking at me funny :)

Hazel

So for something like this to happen again almost 4 years later was worth mentioning. I told my parents and my wonderful dad did some research and found that in 2011 the same thing happened to a pretty little news reporter named Serene Branson while on the job. Where there's no telling when or why these things happen, it was pretty great to get something like this recorded, so people like me can use it as a reference and say, "See! That's what happened to me!" And if you too would like to see, here's the link. Even though it scared the socks right off Phil and I when it happened he had a good time trying to do impressions of me later...ya know...when enough time had passed and you could laugh about it:) After multiple tests, they later attributed Miss Branson's episode to a migraine. So I'm thinking, great--it's just a crazy migraine symptom!

Well, I also told my OB at my upcoming appointment giving him the big sell on my migraine theory, and since we all know migraines are just a common side effect to pregnancy, I expected him to tell me I was right and to not worry about it.

Instead, he referred me to a neurologist...preferably, before I had Hazel.

Dang it.

Who wants to go to a specialist for something you're sure isn't a big deal right when you're supposed to be having a baby? The earliest I could get in was about three weeks after Hazel was born, which turned out to be yesterday. I didn't want to go. I debated whether I should go multiple times and I almost completely forgot about it. But alas, I made it to the consultation. I told him what I told you and well, the whole thing gave me a headache (laughter). Really though. It gave me a really big headache.

Here is what I learned:

  •  Really bad headaches associated with blind spots (auras) and disrupted speech are known as complex migraines (same thing that Serene Branson lady had).
  • Best case scenario, this is what I have--and only seem to get when I'm pregnant.
  • However, in order to safely diagnose a complex migraine, you have to rule out the possibility of it being anything else.
  • This equals a hematology report (blood), heart echo, MRI and an examination of my carteroids. Which I'm sure all sound a bit more intimidating than it really is. I've been told they're all pretty noninvasive tests. 
  •  I'm planning on all of them coming back negative. But I suppose if some of them don't, more testing will resume.
  • Unfortunately, even with the best case scenario--complex migraines in someone my age puts me at a high risk for a stroke. The obvious solution is prevention. In order to prevent them, you need to find out what triggers them, which is different for everybody. In my case, since it's clear that they only happen when I'm pregnant, the obvious solution, so my neurologist tells me, is to not get pregnant anymore. Or as my neurologist sensatively put it, there's no point in having kids if you're not around to take care of them. 
Here is what I feel:
  • Sad.
  • I still feel like I'm still processing everything (with a Costco size jar of chocolate-covered raisins). A lot of times I'm not sure what to think about everything. I know I'm not that concerned with what else it possibly could be because even with the best case scenario, I got told the last thing I wanted to hear. And that's really all I can dwell on right now.
  • It's hard to process right after having a baby. While we were pretty sure we still wanted at least one more, I certainly didn't feel like I was in a place to be making any such decisions, but having the ability to make those decisions taken away is so very disappointing to say the least. 
  • I need to talk this all over with my OBGYN as well as consider getting a second opinion, but again, I think we'll revisit that option at a later time.
  • I am beyond grateful to have the three beautiful babies I have now and I can't help but wonder if I looked into this right after having Ryder, that may not have been the case. So maybe I should be thanking that nurse that didn't seemed phased at all by my odd symptoms.
  • Although it is a lot to process, I am so grateful I found out when Hazel was only 2 weeks old--just in case she is my last. As you can imagine it has greatly affected my current attitude toward this "challenging" newborn phase. 
 Now you can see why the whole thing gave me a headache:) 

12 comments:

  1. Dear Jazzy,

    I'm still so glad you are okay! I hope the tests go well.

    We are praying that the test results will be conclusive, so you can know what decisions to make in the future.

    Love you.

    ReplyDelete
  2. Oh...this is sad! But your adorable babies need their beautiful mommy!

    ReplyDelete
  3. How scary and sad! You know that I of all people know what its like to have undiagnosed neurological symptoms... no fun at all! I've even had a TIA stroke now (mini-stroke with no lasting effects) that was stress-related (I was expecting my doctor to order a full work-up, since every woman in my family has heart problems/strokes, but he said at my age, I just need to eat healthier and step away from the computer to take the dog for a walk more often- which was right-on).
    Now I'm going to think out loud (and I do think it would be worthwhile to get a second opinion). Generally, pregnancy in and of itself wouldn't cause something like that, but it can cause an increased blood volume, higher blood pressure and all sorts of other fun... did you ever have high BP while pregnant? I'm assuming your doctor ruled out GD or pre-eclampsia, of course. Or you could be like me and stress could factor in (I suspect being pregnant with two little ones running about could be stressful). Outside factors could cause it too- could be triggered by chocolate or nitrates or some food sensitivity that only shows up when your body is stressed by hormones and babies.

    Anyways, I'd definitely look into it a lot more before ruling out another baby. Seems like a very hasty conclusion. And obviously, talk to God about his baby plans for you, knowing that you obviously have a long while before you need to make any decisions. Best of luck with all the tests- I've definitely been there and while you don't want a bad test result, going undiagnosed (And therefore untreatable) can be frustrating too.

    ReplyDelete
  4. I'm sad for you. I was told to stop having babies too. My health was an issue. It is hard to process through! Hang in there and "Hope is the Thing".

    ReplyDelete
  5. Congrats on your adorable Hazel Ann! What a roller coaster of emotions you've had in the last few weeks. I hope whatever is concluded, you feel at peace about it. Your kids are adorable and I think you're a fantastic mother! Good luck with the new born phase, I'm anxious to be there myself!

    ReplyDelete
  6. I'm sorry Jasmine. Scary stuff. Enjoy that baby and trust in the Lord. :)

    ReplyDelete
  7. Love you. Love all those babes you make:) I am sure grateful for those munchkins! The things we go through to bring em' here can sure be rough though, huh!? You're a trouper, hang in there mamma! Keep us posted. Can't wait to see you next month. xoxo

    ReplyDelete
  8. So, so much to take in after just having a baby! You are very brave for getting the full workup and investigating this fully. I'm with you in assuming the tests will come back all clear and you will be fine! It's hard to have other people or circumstances dictate your plans - I know you will do what is best for you, your family, and what the Lord wishes for you. Sending you lots of love!!

    ReplyDelete
  9. I am so sorry to hear this! I hope they can figure everything out. I'll be thinking about you. Btw, Your kids' baby pictures are so adorable.

    ReplyDelete
  10. Anonymous6:04 PM

    I love you brave girl! You sound good and strong. I will remember you in my prayers sweetheart.
    Aunt Lancy

    ReplyDelete
  11. I'm so sorry!

    Congratulations on your beautiful babies (Hazel is gorgeous!)

    Hang in there, prayers are being sent your way!

    xo

    ReplyDelete